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Fri, 12 Jul 2024 15:20:29 -0500
2021-08-02 Print

Spastic Paraplegia Foundation Kicks-Off Annual Rare Disease Awareness Week

Top donors will be recognized during a virtual ceremony on August 28, 2021.


The Spastic Paraplegia Foundation announces the 3rd Annual 5K Run, Walk & Roll as the kick-off event for the #HSPandPLS Awareness Week. Top donors will be recognized during a virtual ceremony on August 28, 2021. Awareness Week, held August 22-28, 2021, is an annual fundraiser to fund medical research and raise awareness for two progressive neurological diseases - Hereditary Spastic Paraplegia (HSP) and Primary Lateral Sclerosis (PLS). We are a 501(c)3 nonprofit Tax ID#: 04-3594491.

#HSPandPLS Awareness Week promotes understanding of rare diseases, creates opportunities for mutual sharing and support with patients and research scientists, raises awareness of therapies and aides for enhancing function, and supports the Foundation with donations for medical research to find cures and treatments. During Awareness Week, members, families, and caregivers of the HSP and PLS communities across the world will hold fundraising events to benefit the SP-Foundation.

Like ALS (also known as Lou Gehrig’s disease), HSP and PLS are progressive neurological diseases affecting people of all ages. As more people are affected by neurological problems, we begin to understand that additional education and scientific research is vital to patients, including those with Parkinson's, MS, ALS, and, potentially, those with spinal cord injuries. Currently, there are no known cures and no way to slow or reverse the progressive disabilities of these neurological rare diseases.

GoFundMe: Register for 3rd Annual 5K Run, Walk & Roll:

The Spastic Paraplegia Foundation is a world leader, dedicated to medical research in finding cures and treatments for, motor neuron diseases, Hereditary Spastic Paraplegia (HSP) and Primary Lateral Sclerosis (PLS). Most people with HSP or PLS experience weakness and spasticity (which is a condition where certain muscles are continuously contracted.) in the lower body, causing issues of mobility and some endure continuous pain. PLS patients may also endure upper body spasticity including the inability to speak and swallow. The most obvious trait is the inability to walk naturally, making daily living difficult, often requiring the use of a wheelchair.

Contact Info
Spastic Paraplegia Foundation
1605 Goularte Place, Fremont, CA 94539-7241

Phone: 877-773-4483